People Resources

 

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z A Administration on Aging The Administration on Aging (AoA) web site includes information designed for Older Americans and their families as well as those concerned about providing the opportunities and services to enrich the lives of older persons and support their independence. Website: http://www.aoa.gov/ Aids Information Network 1211 Chestnut Street, 7th Floor, Philadelphia, PA 19107. Runs projects related to education and prevention of HIV/AIDS. Library answers questions by phone, fax or e-mail. Phone: 215-575-1110 x131 Fax: 215-575-1123 E-mail: Web site: aidsinfo@critpath.org. ALS Association 21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364. National information resource for Amyotrophic Lateral Sclerosis (ALS), commonly referred to as Lou Gehrig's disease. Phone: 818-340-7500 Web site: http://www.alsa.org. American Academy of Hospice and Palliative Medicine AAHPM is an organization for physicians who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families. http://www.aahpm.org ABCD- Americans for Better Care of the Dying ABCD is a non-profit coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with a fatal illness. http://www.abcd- caring.com Agency for Health Care Policy and Research AHCPR is the lead agency charged with supporting research designed to improve the quality of health care, reduce its cost, and broaden access to essential services. http://www.ahcpr.gov The Alliance for Aging Research is a private, not-for-profit advocacy organization fighting for science policies in the nation's capital to speed breakthroughs for greater health, vitality and longevity. Website:http://www.agingresearch.org/ Alzheimer's Association 919 N. Michigan Ave., Suite 1000, Chicago, IL 60611. The only national voluntary organization dedicated to curing Alzheimer's disease and providing education and support to people with he disease and their caregivers. They can refer you to local chapters and support groups. Website: http://www.alz.org/ Alzheimer's Disease Education and Referral(ADEAR)Center The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institutes of Health under the U.S. Department of Health and Human Services. You will find information about Alzheimer's disease and related disorders. Website: http://www.alzheimers.org/ American Association for Homes and Services for the Aging AAHSA represents not-for-profit organizations dedicated to providing high quality health care, housing and services to the elderly http://www.aahsa.org American Association of Retired Persons Everything you ever wanted to know about AARP including information on Modern Maturity and the Bulletin; events in your community; advocacy; press releases; AARP programs; and frequently asked questions about the organization. http://www.aarp.org/ American Brain Tumor Association 2720 River Road, Suite 146, Des Plains, IL 60018. A not-for-profit organization offering publications addressing brain tumors, their treatment, and coping with the disease. They also maintain a nationwide listing of support groups. Phone: 800-886-2282 Web site: http://www.abta.org/ American Cancer Society 1599 Clifton Road, NE, Atlanta, GA 30329-4251. The nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. Phone: 800-ACS-2345} Web site: http://www.cancer.org. The American College of American Society of Internal Medicine (ACP-ASIM) ACP-ASIM is a medical specialty society designed to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine. http://www.acponline.org/index.html The American Geriatrics Society AGS is a professional organization of health care providers dedicated to improving and effecting change for the health and well being of all older adults. http://www.americangeriatrics.org The American Health Institute There is much research to support clinical observations that a person's emotional state influences the development and course of cancer as well as many other serious illnesses. This domain describes how the mind and emotions can be used most effectively to regain health. Website: http://www.ahealth.com/ American Heart Association 7272 Greenville Avenue, Dallas, TX 75231. Committed to reducing disability and death from cardiovascular diseases and stroke. Phone: 214-373-6300 or 800-AHA-USA1 (to be connected to your closest affiliate) Web site: http://www.americanheart.org American Liver Foundation 1425 Pompton Avenue, Cedar Grove, NJ 07009. National non-profit organization dedicated to preventing, treating, and conquering hepatitis and other diseases of the liver and gallbladder. Phone: 800-223-0179 Web site: http://www.liverfoundation.org. American Lung Association 1740 Broadway, New York, NY 10019-4374. Dedicated to preventing lung disease with a nationwide priority on asthma. Phone: 212-315-8700 E-mail: info@lungusa.org Web site: http://www.lungusa.org. American Medical Association 515 N. State Street, Chicago, IL 60610. The AMA’s web site contains extensive links to disease-and condition-rela ted sites on the www. Phone: 312-464-5000 Web site: http://www.ama-assn.org. American Nurses Association 600 Maryland Ave. SW, Suite 100 West, Washington, DC 20024-2571. The largest professional organization representing registered nurses in the United States. Phone: 800-274-4ANA Web site: http://www.nursingworld.org. American Parkinson Disease Association 1250 Hylan Blvd., Suite 4B, Staten Island, NY 10305. Committed to serving the Parkinson community through a comprehensive program of research, education and support. Phone: 718-981-8001 or 800-223-2732 E-mail: apda@admin.con2.com. American Pain Society APS is a non-profit multidisciplinary educational and scientific organization dedicated to serving people in pain, through research, education, treatment, and professional practice. http://www.ampainsoc.org American Physical Therapy Association Section on Geriatrics The Section on Geriatrics is a component of the American Physical Therapy As sociation, currently comprising more than 500 physical therapists, physical therapist assistants, and students committed to providing quality care for t he geriatric client. This web site contains information of use to section me mbers, other physical therapists, geriatric clients and their families and a nyone concerned with healthcare issues for older individuals. http://geriatricspt.org/ American Society on Aging The American Society on Aging (ASA) is a nonprofit, membership organization that informs the public and health professionals about issues affecting the quality of life for older people and promotes innovative approaches to meet these needs. http://www.asaging.org/ American Society for the Advancement of Palliative Care ASAP Care is a personal effort to help expedite the reform of terminal health care practice. http://www.asap-care.com/ American Society for Bioethics and Humanities ASBH is a professional society of individuals, organizations, and institutions interested in bioethics and humanities. http://www.asbh.org American Society of Law, Medicine and Ethics ASLME provides high-quality scholarship, debate, and critical thought to the community of professionals at the intersection of law, health care, policy, and ethics. http://www.aslme.org Approaching Death: Improving Care at the End of Life This report, from a committee of the Institute of Medicine, calls for changes to improve end-of-life care, better training of health care professionals, reform of outdated laws that inhibit the use of pain-relieving drugs, and testing of new payment options. http://www2.nas.edu/hcs/21da.html The Assisted Living Facilities Association of America(ALFAA)is a national no nprofit membership organization dedicated to enhancing the quality of life in assisted living residences and promoting the interests of the assisted living industry. http://www.alfa.org/ Association of Cancer Online Resources Inc. ACOR is a non-profit patient advocacy organization founded to develop, support and represent Internet based resources for up-to date information to cancer patients. http://www.medinfo.org Association for Death Education & Counseling 638 Prospect Ave., Hartford, CT 06105. ADEC is dedicated to improving the quality of death education and death related counseling and caregiving. Phone: 860-586-7503 Web site: http://www.adec.org. Association of Pediatric Oncology Nurses 4700 W. Lake Ave., Glenview, IL 60025. Phone: 847-375-4724 FAX: 847-375-47777 Web site:http://www.apon.org. Return to Top B Bereavement and Hospice Support Netline This is a web page listing bereavement support groups and services, state by state. Web site: http://www.ubalt.edu/www/bereavement. Better Health Better Health is an online interactive forum offering support and help on a variety of medical concerns and conditions. http://www.BetterHealth.com   C Cancer Net This site offers a wide range of accurate and credible information from the National Cancer Institute. http://cancernet.nci.nih.gov Candlelighters Childhood Cancer Foundation 7910 Woodmont Ave., Suite 460, Bethesda, MD 20814. Provides support and information to families with children who have cancer, to professionals, and to adult survivors. Phone: 301-657-8401 or 800-366-2223 Web site: http://www.candlelighters.org Caregiver Network Based in Toronto, Canada the goal of CNI is to be a national single information source to make your life as a caregiver easier. http://www.caregiver.on.ca:80/index.html Caregiver Survival Resources Caregiving is becoming a significant issue for many people. This resource provides help to others to cope with the demands of caregiving. http://www.caregiver911.com/ Catholic Health Association of the United States Catholic-sponsored health organizations provide the aged and chronically ill population with a broad spectrum of high-quality professional services. http://www.chausa.org Center to Improve Care of the Dying CICD is an, interdisciplinary team of committed individuals, engaged in research, public advocacy, and education activities to improve the care of the dying and their families. http://www.gwu.edu/%7Ecicd/ Children of Aging Parents (CAPS) is a nonprofit organization that provides information and emotional support to caregivers of older people. CAPS serves as a national clearinghouse for information on resources and issues dealing with older people. http://www.careguide.com Children’s Hospice International 2202 Mt. Vernon Ave., Suite 3C, Alexandria, VA 22301. Provides medical and technical assistance, research and education for children with life threatening conditions and their families. Phone: 702-684-0330 E-mail: chiorg@aol.com Web site: http://www.chionline.org Choice In Dying 200 Varick Street, New York, NY 10014. Provides information about advance-directives (Living Wills and Durable Powers of Attorney for Health Care). Call for state-specific forms. Phone: 800-9 89-WILL. http://www.echonyc.com/%7Echoice/ Chronicle of Philanthropy The newspaper of the non-profit world. http://www.philanthropy.com Clinical Care Options-HealthCare Communications Group A state of the art medical resource for healthcare professionals. http://www.healthcg.com The Commonwealth Fund engages in independent research on health and social policy issues. http://www.cmwf.org/ The Cochrane Pain, Palliative Care and Suportive Care Collaborative Review Group The work of the PaPaS includes the preparation, maintenance & dissemination of systemic reviews of randomized controlled trials of interventions concerned with pain and palliative care. http://www.jr2.ox.ac.uk/Cochrane/ The Compassionate Friends PO Box 3696, Oak Brook, IL 60522-03696. A self-help organization offering friendship and understanding to parents an d siblings following the death of a child. They have 580 chapters nationwide . Phone: 630-990-0010. Web site: http://longhorn.jjt.com/~tcf_national/ Compassion in Dying CID assists patients & families in reviewing cases of suspected inadequate treatment of pain, at no charge. If you know of a case where a dying patient is believed to have received inadequate pain care contact CID. http://www.compassionindying.org/ Cystic Fibrosis Foundation 6931 Arlington Road, Bethesda, MD 20814. Dedicated to the development of means to cure and control cystic fibrosis (C F) and to improve the quality of life for those with the disease. Phone: 800-344-4823. Return to Top D Death & Dying was the inspiration of Kelly, the owner in June of 1997. The mission at Death and Dying is to provide you with comfort, support, and education about issues surrounding death at times of apprehension, confusion , and sorrow as well as at times of understanding, growth, and serenity. http://www.death-dying.com/aboutus.html Death, Dying and Grief Resources This web site represents a large and comprehensive collection of Internet resources with a holistic perspective of the death process. http://www.katsden.com/webster/index.html DeathNET is an international archive specializing in all aspects of death and dying with a sincere respect for every point of view, encompassing the legal, medical, and cultural aspects of human mortality. http://www.rights.org/%7Edeathnet/open.html Department of Consumer Affairs - California /This web site is the funeral business regulations page for the State of California. The Dept. of Consumer Affairs is the regulatory agency for the funeral industry in Calif. Phone: 916-322-7737 http://www.dca.ca.gov/cemetery/funeral.htm The Dougy Center PO Box 86582, Portland, OR 97286. Provides support groups for grieving children that are age-specific (3-5, 6- 12, teens) and loss-specific (parent death, sibling death, survivors of homicide/violent death, survivors of suicide). The Center also provides consultations to schools. Phone: 503-775-5683. E-mail: help@dougy.org Dying Well Defining Wellness through the 'End of Life': Resources for patients and families facing life-limiting illness. http://www.dyingwell.com/ Return to Top E Eldercare Web, is a collection of reviewed links to on-line information about health, financing, housing, and other issues related to the care of the frail elderly. http://www.elderweb.com/index.shtml\ Elderhostel Elderhostel, Inc. is a not-for-profit organization with 25 years of experien ce providing high-quality, affordable, educational adventures for adults who are 55 and older. These short-term educational programs are a fun and excit ing way for you to share new ideas, explore new places and make new friends. http://www.elderhostel.org/ Elizabeth Kubler Ross, M.D., "On Death and Dying" Elizabeth Kubler-Ross, M.D. is widely recognized as one of the foremost authorities in the field of death & dying. "On Death and Dying", is required reading in most major medical and nursing schools and graduate schools of psychiatry and theology. http://www.doubleclickd.com/kubler.html F Federal Trade Commission This is the branch of the Federal Government that regulates fair trade and p ractices for all states in the U.S. It is the agency that legislated and adm inistrates the Funeral Rule. Web site: FTC - http://www.ftc.gov/The Funeral Rule website The Funeral Rule website Funeral and Memorial Societies of America FAMSA is dedicated to a consumer’s right to chose a meaningful, dignified, affordable funeral. Web site: http://www.funerals.org/famsa Return to Top G Gay Men’s Health Crisis 129 W. 20th street, New York, NY 10011. The nation’s oldest and largest AIDS service organization. GMHC offers a v ariety of services, including legal assistance, nutrition counseling, family services and crisis intervention. Phone: 212-807-6664 AIDS Hotline: 212-807-6655. Gilda’s Club 195 W. Houston Street, New York, NY 10014. Psychological support community for people with cancer, their families and friends, offering support, meditation and networking groups, potluck suppers, and social events. The Club also offers special programs for children whose parents or family members have cancer or who have cancer themselves. There are ten affiliates across the country. Phone: 212-647-9700 E-mail: mannheim@walrus.com. GriefNet A comprehensive gateway to bereavement and grief-related resources on the www. Web site: http://www.rivendell.org. The Growth House A comprehensive international gateway to resources on the web related to lif e-threatening illnesses and end-of-life issues. Web site: http://www.growthhouse.org. Return to Top H Hamot Medical Center HMC is a strongly committed to professional education and in September 1998 hosted the First Annual Doctor's Death and Dignity Conference. http://www.hamot.org/highlight_proceed.htm Health Care Financing Administration Consumer healthcare information from the Health Care Financing Administratio n (HCFA), the federal agency that administers the Medicare, Medicaid and Child Health Insurance Programs. Web site: http://www.hcfa.gov/ Healthfinder Consumer healthcare information from the U.S. Government, with selected online publications, databases, web sites and support groups. Web site: http://www.healthfinder.gov. Hemlock Society USA and PRO-USA For those who support the rights of the terminally ill to choose death with dignity, who support personal control and autonomy in end-of-life decisions, and who believe that laws should allow a terminally ill person the choice of medical assistance in hastening their death. http://www.hemlock.org/hemlock/index.html Hospice Foundation of America 2001 S Street NW, Suite 300, Washington, DC 20009. Sponsors an annual Living with Grief teleconference series, a monthly bereavement newsletter and other publications. Phone: 202-638-5419 Web site: http://www.hospicefoundation.org. Return to Top I In Loving Memory 1416 Green Run Lane, Reston, VA 20190. Provides mutual support, friendship and help for parents who have lost a child. Phone: 703-435-0608. Innovations in End-of-Life Care Innovations is an international peer-reviewed journal and on-line forum highlighting promising practices that improve end-of-life care . http://www.edc.org/lastacts/ INTERNAL REVENUE SERVICE This is the official website for the IRS. It contains up to date information as well as downloadable forms that can be completed and filed. Website: http://www.irs.gov/ International Association for the Study of Pain IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists, and other health professionals actively engaged in pain research and to those who have an interest in the treatment of pain. http://www.pslgroup.com/dg/1ff02.htm International Hospice Institute & College A non-profit organization dedicated to sharing hospice and palliative care information world-wide. http://www.hospicecare.com International THEOS Foundation 322 Blvd. of the Allies, Suite 105, Pittsburgh, PA 15222 THEOS (They Help Each Other Spiritually) helps people whose spouses have died, providing educational materials and emotional support for the newly widowed. Phone: 412-471-7779. Return to Top J K Kids Home A web page just for kids with cancer, sponsored by the National Cancer Institute. Web site: http://wwwicic.nci.nih.gov/occdocs/KidsHome.html. L Last Acts Robert Wood Johnson Foundation PO Box 2316 Princeton, NJ 08543-2316 Last Acts is a call-to-action campaign designed to improve care at the end of life. Its goals are to bring end-of-life issues out into the open and to help individuals and organizations pursue the search for better ways to care for the dying. Phone: 609-452-8701E-mail: mail@rwjf.org Web site: http://www.lastacts.org Leukemia Society of America 600 Third Ave., New York, NY 10016. Dedicated to the cure of leukemia and it’s related cancers - lymphoma, mul tiple myeloma and Hodgkin’s disease - and to improve the quality of life of patients and their families. Phone: 212-573-8484 http://www.leukemia.org Lighthouse International is a leading resource worldwide on vision impairment and vision rehabilitation. Web site: http://www.lighthouse.org Longwood College Library: Doctor Assisted Suicide --a guide to WEB Sites and the Literature The selections gathered here provide varied points of view, some history as well as print and electronic coverage on PAS. http://web.lwc.edu/administrative/library/suic.htm Return to Top M Med Help A non-profit organization founded to assist those in need of medical information written in non-technical terminology. Web site: http://www.medhelp.org Medic Alert Foundation The Medic Alert Foundation is a worldwide nonprofit organization dedicated t o providing personal medical information to protect and save lives. http://www.medicalert.org/ Medical College of Wisconsin Palliative Care Program This program is committed to improving care for the dying in America through the development, implementation and dissemination of innovative education and clinical care programs. http://www.mcw.edu/pallmed/ Medicare Consumer Information The Health Care Financing Administration (HCFA) administers Medicare, the na tion's largest health insurance program, which covers 39 million Americans. Medicare provides health insurance to people age 65 and over and those who have permanent disabilities. Websites:http://www.medicare.gov http://www.hcfa.gov/medicare/mcarcnsm.htm Medicare Rights Center The Medicare Rights Center (MRC) provides free counseling services to Medicare beneficiaries who cannot afford private assistance for Medicare-related issues. http://www.medicarerights.org Memorial Sloan Kettering Cancer Center MSKCC's web site provides a wide range of information for medical professionals, patients, their families, and the general public. http://www.mskcc.org Multiple Sclerosis Association 706 Haddonfield Rd. Cherry Hill, NJ 08002. Provides direct care services to those with MS, including a national toll-free hotline, peer counseling, support groups, therapeutic equipment loan program, educational literature, and symptom management therapies. Phone: 800-833-4672. Return to Top N The National Aging Information Center (NAIC), established in 1995 by the Administration on Aging, serves as a central source of aging information for a broad national audience. http://www.aoa.dhhs.gov/naic/default.htm National Association of Area Agencies on Aging (NAAAA) The represents the interests of Area Agencies on Aging across the country. http://www.n4a.org/ National Association for Home Care NAHC is committed to serving the home care and hospice industry, which provides services to the sick, the disabled, and the terminally ill in the comfort of their homes. http://www.nahc.org/ National Association of People with AIDS 1413 K St. NW, Washington DC 20036. NAPWA provides free publications on treatment and have an extensive informat ion and referral department that includes a fax-on-demand system. They also have a health and treatment department that provides up to date treatment in formation and a free bi-monthly publication, Medical Alert (Available in Eng lish and Spanish.) Phone:202-898-0414, fax: 202-789-2222. Web site: http://www.thecure.com. . National Brain Tumor Foundation 785 Market St., Suite 1600, San Francisco, CA 94103. Provides a variety of support and education services for patients and their families, including booklets, newsletters, support group listings, and assis tance starting new groups, and a toll-free tumor information line. Phone: 415-284-0208 Information Line: 800-934-CURE. National Cancer Institute 9000 Rockville Pike, 31 Center Dr. - MSC 2580, Bethesda, MD 20892. The NCI is the largest component of the National Institutes of Health. It coordinates a national research program on cancer cause and prevention, detect ion and diagnosis, and treatment. In addition, it provides information about cancer to patients, the public at large, and health professionals. Phone: 301-496-5583 or 800-422-6237 TTY: 800-332-8615. Web site: http://www.nci.nih.gov National Coalition for Cancer Survivorship 1010 Wayne Avenue, Suite 505, Silver Spring, MD 20910. NCCS offers information on employment and insurance issues and provides referrals to sources of support and information. Phone: 301-650-8868. Web site: http://www.access.digex.net/mkragen/canserach.html The National Consumer Law Center is a private, nonprofit legal resource organization that is committed to making consumer law work for the interests of low income people. Web site: http://www.consumerlaw.org/ National Counsel on Aging NCOA is an organization representing agencies and individuals committed to the well-being of the increasing older population. Web site: http://www.shs.net/ncoa/ncoa.htm National Hospice Organization 1901 N. Moore St., Suite 901, Arlington, VA 22209. NHO provides referral services to link individuals with hospices in their local communities, and various educational programs. Phone: 703-243-5900 Web site: http://www.nho.org The National Health Information Center (NHIC) is a health information referral service. NHIC puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers. Web site: http://nhic-nt.health.org/ The National Institute on Aging NIA promotes healthy aging by conducting and supporting biomedical, social, and behavioral research and public education. http://www.nih.gov/nia/ National